The publication of the "WHO Guidance for human genome data collection, access, use and sharing" in November 2024 marks a major milestone in advancing ethical standards for genomic data globally. For the first time, a comprehensive set of principles has been established to ensure respect for individual rights, promote equity, and foster collaboration.
This webinar provides a unique opportunity to hear directly from WHO experts and global leaders about the guidance and its practical implications for research, policy, and healthcare systems.
Key Areas of Focus:Promoting equitable access to genomic technologies and data.
Embedding ethical considerations into research and public health.
Simplifying data-sharing while ensuring privacy.
Strengthening the role of genomics in health systems.
Building global collaboration for ethical genomic research.
Target Audience:
This event is designed for a wide range of stakeholders, including:Policymakers: Government agencies, regulatory bodies, and international organizations responsible for health policies and genomic data governance, including WHO.
Healthcare and Research Institutions: Leaders and administrators involved in integrating genomics into healthcare systems and research frameworks.
Researchers: Academics and industry professionals engaged in genomic data collection, sharing, and analysis.
Ethicists: Experts dedicated to addressing ethical challenges in genomic data governance and its applications.
Advocacy Groups and Civil Society: Organizations and advocates promoting equity and ethical practices in health and genomics.
Funders: Public and private organizations supporting genomics research and initiatives.
This broad audience ensures an inclusive dialogue, fostering collaboration to address challenges and opportunities in genomic data governance globally.
Objectives:Understand WHO’s principles for advancing ethical genomic data sharing.
Explore how stakeholders can align practices with the guidance.
Discuss integrating genomics into health systems.
Share strategies for addressing challenges in data sharing.
Don’t miss this chance to engage with WHO and global experts on shaping the future of ethical genomic data sharing!
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